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Welcome from the AKU Society
AKU was the first genetic disease, first described by Sir Archibald Garrod in 1902. Over 100 years later there is still no cure and patients receive little help to cope with its effects. The AKU Society aims to change this by promoting awareness of AKU and funding research to understand and treat the disease.
Our website is split into sections, so are you:
A Researcher interested in AKU?
A Medical Professional treating patients with AKU?
A Potential Funder?
NEW PARTNERSHIP TO FOCUS ON IMPROVING HEALTHCARE MANAGEMENT FOR RARE DISEASE AKU PATIENTS 7 June 2012: Patients Know Best (PKB), the world’s first patient-controlled electronic medical records system has teamed up [...]
We're advertising for a new position at the AKU Society - an Online Communities Officer. The position will be hosted at our Cambridge office, and renumerated at 21,000 per annum. Job Description The Online Communities Officer will manage the set up and [...]
We have some very good news for you as we continue our quest to find a cure and help patients with AKU: 1. We are recruiting for our new AKU Online Communities Project Thanks to funding from the Big Lottery Fund's Reaching Communities scheme, we are now [...]
If you're wondering why we haven't updated the blog for a while - we're on hiatus, while we're redesigning the whole website. Look out for the newly designed site soon. We'll keep the Twitter feed going (https://twitter.com/#!/findAKUre) if you want to k [...]
There's a great interview in today's Daily Express. Simon Laxon explains what it's really like to live with AKU, how it's changed his life and what hope he has for the future. There's even a quote from our fantastic medical director, Dr Ranganath. You c [...]